Verdú pastry shop in Dénia has created a cake with the favorite flavors of a local child suffering from the ultra-rare IFAP syndrome. All proceeds from the sale of this cake will be fully allocated to rare disease research, demonstrating the municipality's commitment to this cause.
This solidarity initiative has managed to mobilize the entire municipality of Dénia, which has shown a massive response of support. Both residents and the school, as well as various solidarity entities, have actively participated in promoting and supporting this cause.
“"The massive response of support from the neighborhood, the school, and various solidarity entities has been fundamental in driving this initiative."
The story of this child, with the ultra-rare IFAP syndrome, has been the driving force behind this campaign. His parents have shared their experience regarding the diagnosis and living with the disease, highlighting the importance of research to find solutions.
The main objective is to raise awareness about the reality of rare diseases and the need for funding for research. The sale of this cake not only offers a delicious product but also directly contributes to a vital cause for many families.
